The Next Step: Research Studies

We’ve just launched brand new research studies in the Visible app.

We started Visible around a year ago with the ambition to create visibility for Long Covid and ME/CFS. We knew that to achieve this, our approach had to be two-fold:

First, empower people to measure and manage their own conditions
Second, increase our collective understanding of these conditions.

Over the past 6 months, we’ve been building tools to people better manage their health. The result of this is that we’ve already collected one of the most comprehensive datasets on Long Covid and ME/CFS including symptoms, biometrics and medication.

This data is immensely powerful; not just for individuals, but for researchers too. By bringing together tens of thousands of people’s data, we can now help to uncover insights that could lead to thing like new treatments and changes in government policy.

Partnering with Imperial College London

Collaborating with world-leading research institutions is the next step toward making conditions like ours visible.

Today we’re announcing our first partnership with one of the world’s leading research institutions, Imperial College London. You can now opt-in to share your Visible data directly into our first studies in to female reproductive health and economic of the conditions.

Investigating the menstrual cycle’s link to symptoms

Our first study is with Dr Viki Male an immunologist in the Department of Metabolism, Digestion and Reproduction at Imperial College London

It’s been evident to patients for decades that the menstrual cycle has a major impact on symptoms. It needs more research and visibility. Understanding the relationship between the cycle and symptoms could lead to deeper research into new treatment areas.

Our first study titled the ‘Effect of the menstrual cycle on Long Covid and ME symptoms' will researching this.

Investigating the economic impact of Long Covid

Our second study is with Christian Morgenstern, an Infectious Disease & Health Economics Researcher in the School of Public Health at Imperial College London.

With disability claims rising in the US, and long-term sickness at an all-time high in the UK, we need better epidemiological models of Long Covid. Understanding these conditions better is key to changing health policies around the world. Our second study titled ‘The epidemiological disease properties and economic impact of Long Covid’ will be researching this.

More studies coming soon!

This is just the beginning. We have more studies coming soon, and we’re inviting academic researchers and institutions around the world to host studies with us. If you’re a researcher and interested in launching a study, reach out to the team at research@makevisible.com.