What is Visible?

A letter from our founder.

Many invisible illnesses like ME/CFS and Long Covid share one debilitating symptom: Post Exertional Malaise (PEM).

For people with PEM, minor exertion can cause exacerbation of symptoms, often hours or days after an activity. This makes it very difficult to lead a predictable and normal life. But studies show that Pacing can help to reduce the impact of PEM dramatically and improve recovery time by up to 75%.

Pacing your activity properly requires you to understand your illness - what level of activity can you sustain? How long does it take you to recover? Metrics like Heart Rate, Heart Rate Variability (HRV) and Anaerobic Threshold (the level after which you may experience PEM) can help to answer these questions. Combining this data with an understanding of your activity and symptoms can help to build a full picture of your illness. Armed with this knowledge, you can live the fullest life possible.

Until now, people have used fitness trackers, symptom diaries and spreadsheets to manage their illness and pace their activity. But these tools aren’t designed with us, or the wider invisible illness community, in mind. At Visible, we think there’s a better way.

We’d love you to join us on this journey. Together we can make invisible illness, Visible.

Yours,

Harry